Life on the home front has been fairly quiet. Work, doctors, and all the good stuff.
We still don't know what's going on with Bekah, she's had a 30 day heart monitor on and with only two days left to go she has only passed out once. Passing out only once in 30 days is great, compared to where she was, but it's just less data for the monitor to get. Hopefully it's enough.
Kim had started back to school. There are some issues on the school and with financial aid, but it's not just Kim, it affects all students and even staff. So far she seems to be enjoying herself in her chosen classes.
Lee is stable in his leukemia. There has been no progression and he remains in remission, as far as CML goes. His Parkinson's disease is progressing, slowly, but as expected with such a disease.
Today he asked me to take him to the Parkinson's resource center. I was shocked because he's not a social person and usually doesn't want to do anything like that. They have us a booklet they put together, Parkinson's 101, a schedule of activities and a pamphlet about some of the activities. They were getting ready to start one of their regular groups, the Tremble Cleffs. It's a singing performance group. It's run by the EWU speech therapy instructors and students. During helps Parkinson's patients learn how to project their voice and speak up. Parkinson's patients speak very softly and are hard to hear, singing helps with that.
We were invited to stay and watch or to participate, you don't have to sing well, or have any ability at all even. We decided we would watch awhile and pretty soon we were kind of sucked in and were participating. We actually had fun, both of us. I foresee us going back to that.
They also have a dance program. You don't have to be able to dance, or even walk to participate. That's on Saturday's though so I would have to request time off... the great thing though is that caregivers or spouses are welcome to participate in most things with the PD person.
They also have a caregivers group that she suggested I look into, it meets during one of the voice/singing groups.
I am seeing more and more declines in him, despite not wanting to see them and trying not to. All these things the lady at the PRC said today hit home, and several times I wanted to cry. She talked about the voice/speaking/swallow issues, the mood and anger issues that often go with PD, the dementia, a lot of things we have been and are experiencing. The last few days have been more of his down days than up.
It was a productive day overall and pretty enjoyable though.
